Friends,
The Students will be back
Dr Sarah, Dr Joe and the physical therapy assistant program students from Bryant & Stratton College will be back starting tomorrow. We are so blessed to have them. It’s great for them to learn about MS and the challenges first hand. It’s awesome for our friends with MS to learn about them and how they can help us. Let’s welcome the students back and provide a great experience for them while they are here. They will be here on Wednesdays for the next 8 weeks. Welcome back! We will miss Dr McKenzie this semester as she is taking on a few more courses for her teaching caseload. We’ll miss you Dr McKenzie.
I missed you last week
Last week, Bonnie and I drove out to Utah for our son Jacob and his now wife Liz’s wedding. They got married just outside Zion National Park. It was a beautiful wedding with beautiful people on both sides of the family and many close friends. Here’s a picture of a run Jacob and Liz went on.
We just got back tonight and I’m tired so this is going to be a shorter e-mail.
Matt Panelli made it!
Matt Panelli climbed Mt Kilimanjaro and made it all the way up and back down despite his challenges with MS and cancer. Way to go Matt!
We’re looking forward to seeing you back at the gym and hearing all about it.
Matt is making a documentary of this journey. Here’s a link to a sneak peak of the initial footage. https://app.frame.io/presentations/7c5de96a-14af-460c-8325-c689ce09440c
We are so happy for you Matt…and proud of you! I’m really looking forward to seeing the documentary.
Dr Kate
Kate’s going on her honeymoon! Kate will be traveling abroad from Sep 7th – 19th. She will pre-record 2 seated balance classes that can be viewed on our YouTube page later this week at https://www.youtube.com/@msjustkeepmoving4994
The standing balance, HIIT, and 8:30 am cardio classes will be paused while she is gone. Mike B kindly offered to cover the 10am cardio class on both Wednesdays.
Neubie
Starting this week, the Neubie team (Ricky, Julie, Gayle and friends) will be starting a new “page” of Neubie use. For previous and new users, it is encouraged to pick one activity/muscle group/movement you want to improve over the next 3 months. Then, the Neubie team can place pads in that area specific to improving your goal. It is highly encouraged to take a photo of the pad placement so you remember where your pads go, and can replicate it every time you use Neubie. Consistency is key to Neubie success, so that’s why we are encouraging users to identify a singular thing they want to work on. Ricky will present more information about this in his upcoming presentation on Friday, September 20th at 11am. For those interested in using the Neubie for the first time to improve function, there are currently 6 slots open on the schedule (20 minutes long each). If you wish to try Neubie for the first time, we ask that you commit to using it consistently (1-2 days/week) for 3 months. On the whiteboard next to the massage chair is a space where you can write your name under “waitlist” if you wish to start Neubie for the first time. From there, one of the Neubie team members can connect with you.
Ed and Adam’s Podcast
This week, Ed, Adam talk about wheelchair struggles.
Here’s a link:
https://podcasters.spotify.com/pod/show/ava-g4/episodes/Wheelchair-Struggles-e2npal9
Thanks Adam, Ed and Ava for doing these podcasts together!
Member Spotlight – Debbie Schaning
Debbie is making progress and she certainly deserves to. She’s working hard!
Our Caregivers Retreat – September 21, 2024
Phil has been working hard to put together another great retreat for our Caregivers. I would love it if all our caregivers would engage in this time together. Here’s a note from Phil. We’ll have more info available to those who sign up.
The cost for this event is covered by MS-Just Keep Moving, Inc. We know how important our caregivers are to all of us living with MS. They do so much for us, we want to do this for them. I hope you will encourage your caregiver to engage in this day with other caregivers.
Here’s a note from Phil:
Hi Dan,
Here is information for promoting Replenish in the newsletter.
2nd Annual Replenish retreat for MS Caregivers
The Redemptorist Retreat Center, Oconomowoc, WI
September 21, 2024
9:30 am – 4:00 pm – Lunch will be served
Register before Noon Friday Sept 6th.
To Register: https://qr1.be/NLQS
QR Code below & attached
Speaker: (These are the key items from her attached bio)As a parent, provider, & trainer for people working with disabilities, Jennifer Nicholson provides invaluable insights, resources, & best practice training for precise program & daily life implementation.
- Jennifer’s practice, Forward Integrated Services (FIS), is staffed by Board Certified Behavior Analysts (BCBAs) who provide training & support for parents & caregivers.
- She is the parent of two teenage sons on the Autism spectrum.
- Her aging father lives with her family.
- She’s the special needs ministry director at Spring Creek Church.
We have room for 50 maximum (Last year we had 15).
Phil Ransom
262.888.0108
Cardio and Balance Programs
These classes are aimed to get everyone exercising together. I like that word “together” 😊. We’ll need help from volunteers before and after the cardio class on Wednesdays and Fridays to get members on and off equipment. All are welcome and encouraged to join.
Wednesdays
8:30am – 9:00am: Cardio exercise
Location: in the big room using aerobic equipment in front of big TV
Pick your favorite piece of equipment to use, bring a water bottle, and arrive a few minutes early to get the equipment set up to your height.
10-10:30am: Cardio exercise
Location: in the big room using aerobic equipment in front of big TV
Pick your favorite piece of equipment to use, bring a water bottle, and arrive a few minutes early to get the equipment set up to your height.
10:30 – 11:00am Tai Chi led by Ricky
Fridays:
9:30 – 10:00am: New Class! High intensity interval training (HIIT) body weight circuit class. Great for those who aren’t attending Friday morning bike rides and want to get their heart pumping! Geared to intermediate to advanced ability level. Class may be indoors or outdoors depending on weather. Find Dr Kate at the start of the class time.
10:00 – 10:30 am: Seated balance class
10:30 – 11am: Standing balance class
Pick the class / classes you feel most able and comfortable participating in. We will have chairs set up to sit on and/or use for balance support.
Email Dr Kate at kborn1234@gmail.com with any questions.
Friday Morning Bike Ride
Once we get into September and October, every ride is a bonus. We will continue riding until the temperature gets below 45 degrees at 7:00am and is not raining. It looks like it will get to 45 degrees during the ride, we’ll still ride. Please dress warmer as the temperature gets cooler.
We could still use a few more volunteers on the ride with us. We’re getting a pretty good rhythm going when we have enough and gets a little more spread out when we don’t. Thanks to all for showing up and doing your part!
We’ll be meeting Friday morning at 7:00am at Nettesheim Park in Pewaukee. It’s on the SE corner of Hwy SS and Oak Street. The GPS address is: N26W27495 Prospect Ave, Pewaukee, WI 53072.
Come a little early so you can get your bike out of your car and be ready to ride as close to 7:00 as possible. We’ll ride until about 8:45. Let’s ride and have some fun!
For those who wish you could join us but can’t; please know we have you in our hearts on these rides. We’re riding with you and for you. I hope you too can join us someday.
Educational Sessions
Friday, September 6th 11:00 am – noon: sharing meeting. Members with MS will have the floor to share what has worked for them to manage their MS and general health. This opportunity was requested by members at the gym to share with each other. No formal presentation will be hosted, but Kate will facilitate discussion if needed.
Friday, September 20th 11:00 am – noon: Neubie progress. Ricky will lead a presentation and discussion on progress members have made on the Neubie and provide a review of the Neubie for past, current, and future users.
Friday, September 27th 11:00 am – noon: muscle atrophy. Kate will lead a presentation on muscle atrophy and what causes muscles to stop working, lose strength, get smaller, and ways to combat atrophy.
Friday, October 4th 11:00 am – noon: Physical therapists, Kimberly Sawall, Emily Hill, and Jennifer Kolesar-Springhetti, from ProHealth Care will review balance tests and the importance of testing balance for walking and translational movement abilities. They will also address fatigue, fatigue management, and assessment of fatigue for people with MS.
Friday, October 18th 11:00 am – noon: Tai Chi. Ricky will lead a presentation and discussion on the benefits of Tai Chi.
Friday, October 25th 11:00 am – noon: Stress management. Deb Graf, psychotherapist, will lead a presentation and discussion on stress management.
Future topics could include: emotional health, nutrition, yoga, tai chi, wellness topics, safe use of gym equipment for your body, best exercise for you and more. What topics would you like to see? Please let Dr Kate, Joan, Traci, Ricky or Dan know.
Let’s get together! – New Hours
We’ll be getting together from 8:00am – noon on Wednesday and Friday mornings at the gym. I hope you’ll join us!
Wisconsin Metal Parts – Westmound Building
MS-Just Keep Moving, Inc.
W228N791 Westmound Drive
Waukesha, WI 53186
Prayer Group We’ll be having our prayer group Wednesday from 11:00am – noon.
I just love the way we share, pray and laugh together while we witness prayers being answered weekly. It’s truly amazing!
Thanks goes to God and to everyone that joins us. Let’s get together to share, listen, talk, give thanks, and pray however God leads us.
MS-Just Keep Caring – Our Caregivers support group will be the first and third Friday of each month from 10:00 – 10:30am. The next one will be this Friday, September 6th 2024. If you’re a caregiver of someone you love with MS, please join us and share your experience of caring for your loved one. This has been very helpful for many. Thanks to all who participate!
Our Facebook page is private. That means you’ll need to join if you want access to all our fun and progress. We’re now at 544 members. That’s awesome! https://www.facebook.com/groups/2639832389489709
Our Facebook page is active and fun. Lots of people are doing more and sharing their journey on Facebook. Feel free to join, post and share your experiences and comments.
There were some awesome pictures, videos and comments shared again this past week. Thank you to all who are sharing!
Thai Massage with Ricky Heldt
Ricky will be here on Wednesdays doing Thai Massage. Ricky will be taking Fridays off for a while. Perhaps through the summer.
There is a sign up board to be used to accommodate your needs for your exercise plan. Some people with spasticity need to be massaged / stretched out before they can exercise. Some people need a massage after a hard workout to loosen up their tight muscles or relieve pain.
We have limited spots for massages, please be considerate of people that need the massage the most in order to do the exercises they need to do or recover from the exercises they just did.
You can pick the time slot that works for you.
Reiki with Linda Linda will be here on Fridays doing Reiki. Many people say Linda’s Reiki work is “magical”. We’re thankful for Linda sharing her gifts and talents with us. Feel free to let Linda know you’d like to do Reiki with her. She also has a sign-up sheet.
Inspirational Humor with Adam Wollert
We’ll be having our inspirational humor zoom call with Adam again next Tuesday. Adam is a gift to all of us. Thanks to all who joined us today!
Please join us if you can.
Tuesdays @ 1:30PM
Here’s the link to join us…I hope you do!
Join Zoom Meeting with this link
https://us02web.zoom.us/j/9431389152?pwd=bWlYbFNaazVnM1M1cWxWMitlODdXUT09
Meeting ID: 943 138 9152
Passcode: 3qP2hu
Phone: 1-312-626-6799
Let’s reach out
I encourage you to share a smile and encouragement with someone. Perhaps you could call someone that you have not talked with for a while just to say hi and see how they are doing. We all could use a little extra love and encouragement.
MS is tough. Let’s have faith, remain calm, be flexible, help each other and learn as much as we can about the challenges of each day as we make good choices.
Let’s keep moving, smiling and loving 😊 It helps!
In God We Trust…we are in good hands.
Dan
Our Website: http://msjustkeepmoving.org/
P.S. With traveling last week, I didn’t get out with the camera. Here’s the sunrise we had on the wedding day.
We went for a hike right up in some of the rocks in the park. It was interesting.
I’m really tired tonight. I’ll try to get some more pics this week for next week.
For those who can’t get out and enjoy nature due your challenges with MS…my heart is with you. You are with me every time I’m out there. I enjoy being out there and I also enjoy sharing with you. I know how hard it is not to be able to get out and enjoy nature. Let’s enjoy nature and God’s beauty together this way.
