Friends,
Sleep and MS – How critical is it?
Dr Kate did a really good job presenting a consolidation of many studies that were done about how sleep affects people with MS last Friday. It was really interesting and could make a huge difference in the lives of people living with MS if we would put the information presented to use.
I don’t know about you, but stress is my number 1 trigger to get my MS symptoms to flare up and the quality of sleep is my number two reason. My bladder doesn’t allow me to sleep too long each night so any little thing I can do to help get proper sleep is a good thing.
Here’s the link to Dr Kate’s presentation about the sleep study in case you missed it.
Nice job Dr Kate and thank you for putting all this information together and presenting it so well.
Ed and Adam’s Podcast
This week, Ed and Adam invite Phil and Brenda to share their journey of living with MS and some of their wisdom about living with MS. Thanks so much for sharing Phil and Brenda!
Here’s a link:
https://podcasters.spotify.com/pod/show/ava-g4/episodes/Introducing-Phil-and-Brenda-e2mu10c
Thanks Adam, Ed and Ava for doing these podcasts together!
Member Spotlight – Gregory Borden
Gregory has been consistent for quite a while now and is also doing his share of volunteer work for us. Let Gregory know what you think of the banners he designed. They will be on display at the Day of Endurance. Perhaps you’ll want to take your picture with friends and family by them. Thanks Gregory!
Day of Endurance 2024 Information – August 24, 2024
Reminder: Get your park pass ahead of time – instructions below
To all our friends with MS and volunteers participating in our 2nd annual Day of Endurance
I thought I would put together some information on what we visualize for this day. I’m confident it will be awesome. We will need everyone’s help to make it happen. Thank you for engaging in this!
What: MS-Just Keep Moving – Day of Endurance / Picnic
Swimming, biking, walking, running, rolling (wheelchair), standing, other games, eating, etc.
People with MS will be doing what they can do regardless of their ability level with the help of so many loving volunteers.
When: Saturday, August 24th
Time: 6:00am Swim start
8:00am All other participants can start to arrive and check in
8:45am National anthem and a few words from Dan
9:00 am Walk, run, roll, and bike start (wave 1 trikes)
12:00 pm Wave 2 trikes
The rest of the day – Picnic and people will be doing what they can do. The picnic area will be the central gathering spot all day.
Where: Naga-Waukee Park, Hartland, WI. Picnic Area #3.
You will need a $7.00 daily park pass for the day if you don’t have an annual pass. You cannot buy park passes at the park. You need to buy them online or go to the courthouse to buy them. Here’s the link for the park pass. https://www.waukeshacounty.gov/parkentry
Why: To bring people with MS, their loved ones and friends together, build friendships, make progress with our MS, do what we can, help others, inspire others, etc.
Let’s have some fun, be safe and see what we can do in a day. I hope you surprise yourself. What we do on this day will be our benchmark for next year. Hopefully many of us do even better next year.
Let’s thank our volunteers
Once again, we have many amazing, selfless, loving, hardworking volunteers stepping up to help us make this Day of Endurance possible. We are so blessed! Thank you to all the volunteers with MS and without MS for making this possible. We wouldn’t even be able to consider doing this without you. Seeing our MS-Just Keep Moving family working together so well without judgement is a beautiful thing! THANK YOU VOLUNTEERS!
If your friends or family are planning on supporting you during your activity, please let Kate know so we know that you’re covered! Email her at kborn1234@gmail.com
Contact Information:
Picnic Area – Paula Weikert 262-923-0160
SAG Vehicle on bike route – Joe Beine 262-470-7897
Safety – Safety is our number one priority all day. Let’s do our part to be safe and keep others safe all day. Staying hydrated our my biggest concern. Be sure to do your part to stay hydrated.
Parking – We will be parking by picnic area #3 and by the park office. If you’re able bodied, please park away from the picnic area and leave the close parking spots for people with walkers, wheelchairs, etc.
Mandatory Check in – Participants – please check in as soon as you get to the picnic area. We need to know who is all here and have waivers signed. If you already signed a waiver, we still need you to check in.
Food – Please bring an item to share at the picnic and/or to fuel participants. There is a sign-up sheet at the gym. Email Kate kborn1234@gmail.com for the list of food items or so she can mark your name down.
Drinks – We are in need of donations of gallon water jugs and electrolyte packets. Since everyone drinks so many different types of drinks, if you want to drink anything other than water and electrolytes, please bring a small cooler with your own drinks.
Chairs – There are about 18 picnic tables in our picnic area. If you aren’t able to sit by a picnic table, please bring a comfortable chair you like
Personal Supplies – Please bring any personal supplies you will need for the day (Water bottles, specific snack / energy bars, suntan lotion, etc.)
Reflective clothing and light – If you are planning to walk after dark, please bring reflective clothing (vest or hat) and a light.
Family and Friends – Please encourage your family and friends to come cheer you on and enjoy the day with us
Other Activities – We will have standing machines, the Grit Chair, and the Sara Steady machine there for people to use as well. There will also be other games and activities at the picnic area.
More Information
On Friday, August 23rd from 11:00 – noon, I will be going over the plan for the day, review the routes and answer any questions. I’m trying to answer some questions with this e-mail.
Please let me know if you have any other questions. We want this to be a great experience for all our participants as well as our volunteers, family, friends, etc.
Day of Endurance Volunteers – August 24, 2024
We’re getting close…only 1-1/2 weeks away. Thanks so much to all who have offered to volunteer in some way. Most of our friends with MS will be busy doing what they’re going to do that day so having volunteers will be important. Our goal is to keep everyone safe and that no one does their event alone. Let’s do it “together”. It’s much more enjoyable that way.
Dr Kate put together a live document that you can enter what you are willing to do for volunteering for the Day of Endurance. Here’s a link to the volunteer sign-up sheet: Volunteers DOE.docx
You can add to this/edit it yourself. You can also let Kate or Mike B know what you’d like to do. They will put you on the sheet.
We want to safely provide an amazing day and experience for all.
Cardio and Balance Programs
These classes are aimed to get everyone exercising together. I like that word “together” . We’ll need help from volunteers before and after the cardio class on Wednesdays and Fridays to get members on and off equipment. All are welcome and encouraged to join.
Wednesdays
8:30am – 9:00am: Cardio exercise
Location: in the big room using aerobic equipment in front of big TV
Pick your favorite piece of equipment to use, bring a water bottle, and arrive a few minutes early to get the equipment set up to your height.
10-10:30am: Cardio exercise
Location: in the big room using aerobic equipment in front of big TV
Pick your favorite piece of equipment to use, bring a water bottle, and arrive a few minutes early to get the equipment set up to your height.
10:30 – 11:00am Tai Chi led by Ricky
Fridays:
9:30 – 10:00am: New Class! High intensity interval training (HIIT) body weight circuit class. Great for those who aren’t attending Friday morning bike rides and want to get their heart pumping! Geared to intermediate to advanced ability level. Class may be indoors or outdoors depending on weather. Find Dr Kate at the start of the class time.
10:00 – 10:30 am: Seated balance class
10:30 – 11am: Standing balance class
Pick the class / classes you feel most able and comfortable participating in. We will have chairs set up to sit on and/or use for balance support.
Email Dr Kate at kborn1234@gmail.com with any questions.
Friday Morning Bike Ride
We had another really nice ride last week. Thanks to all who rode!
We could still use a few more volunteers on the ride with us. We’re getting a pretty good rhythm going when we have enough and gets a little more spread out when we don’t. Thanks to all for showing up and doing your part!
We’ll be meeting Friday morning at 7:00am at Nettesheim Park in Pewaukee. It’s on the SE corner of Hwy SS and Oak Street. The GPS address is: N26W27495 Prospect Ave, Pewaukee, WI 53072.
Come a little early so you can get your bike out of your car and be ready to ride as close to 7:00 as possible. We’ll ride until about 8:45. Let’s ride and have some fun!
For those who wish you could join us but can’t; please know we have you in our hearts on these rides. We’re riding with you and for you. I hope you too can join us someday.
Educational Sessions
This Friday, August 16th 11:00am – noon. Don Beard from Matia Mobility will be demoing a standing machine which is mobile. https://www.matiamobility.com/tek-rmd/
Friday, August 23rd 11:00 am – noon: Day of endurance organizational event. Help us get organized for the event the following day!
Friday, August 30th 11:00 am – noon: Wisconsin Adaptive Sports Association (WASA) is returning to host a “TryIt” session to play pickleball!
Friday, October 4th 11:00 am – noon: Physical therapists, Kimberly Sawall, Emily Hill, and Jennifer Kolesar-Springhetti, from Prohealth Care will review balance tests and the importance of testing balance for walking and translational movement abilities. They will also address fatigue, fatigue management, and assessment of fatigue for people with MS.
Future topics could include: emotional health, nutrition, yoga, tai chi, wellness topics, safe use of gym equipment for your body, best exercise for you and more. What topics would you like to see? Please let Dr Kate, Joan, Traci, Ricky or Dan know.
Let’s get together! – New Hours
We’ll be getting together from 8:00am – noon on Wednesday and Friday mornings at the gym. I hope you’ll join us!
Wisconsin Metal Parts – Westmound Building
MS-Just Keep Moving, Inc.
W228N791 Westmound Drive
Waukesha, WI 53186
Prayer Group We’ll be having our prayer group Wednesday from 11:00am – noon.
I just love the way we share, pray and laugh together while we witness prayers being answered weekly. It’s truly amazing!
Thanks goes to God and to everyone that joins us. Let’s get together to share, listen, talk, give thanks, and pray however God leads us.
MS-Just Keep Caring – Our Caregivers support group will be the first and third Friday of each month from 10:00 – 10:30am. The next one will be this Friday, August 16th 2024. If you’re a caregiver of someone you love with MS, please join us and share your experience of caring for your loved one. This has been very helpful for many. Thanks to all who participate!
Our Facebook page is private. That means you’ll need to join if you want access to all our fun and progress. We’re now at 536 members. That’s awesome! https://www.facebook.com/groups/2639832389489709
Our Facebook page is active and fun. Lots of people are doing more and sharing their journey on Facebook. Feel free to join, post and share your experiences and comments.
There were some awesome pictures, videos and comments shared again this past week. Thank you to all who are sharing!
Thai Massage with Ricky Heldt
Ricky will be here on Wednesdays doing Thai Massage. Ricky will be taking Fridays off for a while. Perhaps through the summer.
There is a sign up board to be used to accommodate your needs for your exercise plan. Some people with spasticity need to be massaged / stretched out before they can exercise. Some people need a massage after a hard workout to loosen up their tight muscles or relieve pain.
We have limited spots for massages, please be considerate of people that need the massage the most in order to do the exercises they need to do or recover from the exercises they just did.
You can pick the time slot that works for you.
Reiki with Linda Linda will be here on Fridays doing Reiki. Many people say Linda’s Reiki work is “magical”. We’re thankful for Linda sharing her gifts and talents with us. Feel free to let Linda know you’d like to do Reiki with her. She also has a sign-up sheet.
Inspirational Humor with Adam Wollert
We’ll be having our inspirational humor zoom call with Adam again next Tuesday. Adam is a gift to all of us. Thanks to all who joined us today!
Please join us if you can.
Tuesdays @ 1:30PM
Here’s the link to join us…I hope you do!
Join Zoom Meeting with this link
https://us02web.zoom.us/j/9431389152?pwd=bWlYbFNaazVnM1M1cWxWMitlODdXUT09
Meeting ID: 943 138 9152
Passcode: 3qP2hu
Phone: 1-312-626-6799
Let’s reach out
I encourage you to share a smile and encouragement with someone. Perhaps you could call someone that you have not talked with for a while just to say hi and see how they are doing. We all could use a little extra love and encouragement.
MS is tough. Let’s have faith, remain calm, be flexible, help each other and learn as much as we can about the challenges of each day as we make good choices.
Let’s keep moving, smiling and loving It helps!
In God We Trust…we are in good hands.
Dan
Our Website: http://msjustkeepmoving.org/
P.S. I had some more fun out in nature with the camera this past week. This isn’t the most photogenic picture but I thought it was interesting seeing all the turtles on a log together.
This interesting moth was enjoying this interesting plant
This deer didn’t care for the guy with the camera
This one was trying to figure me out
These two were posing nicely for me
The sunflowers are starting to bloom
They’re beautiful when they open up
I came across some different colors too
I’m not sure what’s up with this one. It’s a little wild.
I found some great blue herons too
Sometimes I wonder what they’re thinking
For those who can’t get out and enjoy nature due your challenges with MS…my heart is with you. You are with me every time I’m out there. I enjoy being out there and I also enjoy sharing with you. I know how hard it is not to be able to get out and enjoy nature. Let’s enjoy nature and God’s beauty together this way.
